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Taking your child to the hospital for treatment can be a confusing and emotionally taxing experience.
To help parents know what to expect and how to cope, Morgan Stanley Children's Hospital of New York-Presbyterian created the family advisory council, comprised of hospital staff and 30 family members of current and former patients. They work together to help parents and other relatives get all information so they can care for their children with confidence. Members join doctors as they make hospital rounds to understand and give their family-centric perspective on patient care. "Parents are an integral part of their child's healthcare team, even in the hospital," says Karen Bergan, the council’s parent leader and chairwoman. "You know your child best. Listen to them and trust your instincts. When meeting with your doctor, communicate your thoughts, and don't forget to ask lots of questions." In this spirit, the council offers these 10 useful tips: 1. Take notes, and include names and contact numbers for your child's medical team. 2. Store the nurse’s station phone number in your wallet, and call anytime for updates on your child. 3. Give the nurses your contact information so you can be reached anytime. 4. Ask your medical team about the care plan for the day and write it down. 5. Always repeat information back to the doctor or nurse to confirm your understanding. 6. Write down any questions as you think of them—even if one pops in your head in the middle of the night. 7. Refer to your notebook when talking with doctors. 8. Ask for as many explanations of a diagnosis, "labs" or test results as needed until you understand the information. 9. Note any changes in your child's appetite, energy level, mood, pain levels, or other areas, and share this information with the healthcare team. 10. If you think your child is in pain, contact the nurse immediately.
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